EACH Statement on paediatric intensive care units in Europe

Intensive care for critically ill children in Europe can be greatly improved when children are not referred to an adult Intensive care, but admitted to a dedicated paediatric intensive care unit (PICU), cared for by paediatric staff, skilled and experienced in paediatric medical and nursing intensive care.

The European Association for Children in Hospital (EACH) notes with concern that the care of critically ill children in many countries in Europe is not  realizing the ‘Right of the child to the enjoyment of the highest attainable standard of health’ as laid down in the General comment No.15  on art 24 UNCRC[1] rights and is therefore not ‘in the best interests of the child’.[2]

Children are not small adults. They are different in many aspects: physiological, anatomical, functional, developmental and psychological. On an IC for adults staff lack the knowledge and the experience in caring for children in different stages of development.

IN THE BEST INTERESTS OF THE CHILD

Key focal points

In a dedicated Paediatric Intensive Care Unit (PICU):

  • medical staff is specially trained in paediatric intensive care and nurses are trained paediatric critical care nurses, familiar with the complexity of paediatric physiology and age-specific medical conditions. The skills and experience of the medical and nursing staff can optimize the chances of critically ill children to survival and can prevent long-term consequences after intensive care;
  • staff has the opportunity to form a multidisciplinary team together with specialists in paediatric anaesthesiology, psychologists, child life workers, social workers and other professionals who work collaboratively to provide comprehensive care. This includes effective pain management strategies to minimize discomfort. The team-based approach ensures that the physical, emotional, and psychosocial needs of the child are addressed;
  • children have access to specialist equipment for children of different ages. A great deal of the critically ill patients are very young;
  • the importance of the family in the child’s healing process is recognized and encouraged. In a PICU parents and the child (matching the child’s developing abilities) take part  in the decision-making process of the child’s treatment and care. Family support services are offered, parents are encouraged to stay with their child (rooming in) and parental involvement in the child’s care supported. There are overnight facilities and the hospital offers catering facilities (reduced prices or preferably free of charge);
  • the rooms are designed to create a child-friendly and developmentally appropriate environment. Children should be protected from upsetting sights. The rooms are also designed for the needs of the parent. Single-bed PICU rooms are more effective against infections, secure more privacy and are less stressful and noisy than open-bay wards;

Intensive care in a dedicated PICU can not be provided in every hospital. To keep the skills and experience of the medical and nursing staff up to date, a high volume of patients is needed. This asks for centralisation of PICU facilities. As a result, a dedicated PICU might be on quit a distance from where the child got ill. Save transport of the child and the parent is important. If parents have to travel in order to be able to stay with their critically ill child, efforts should be made to compensate their costs. Children and their parents should have equal access to a PICU,  regardless of where they live.

EACH endorses the view of the Committee on the rights of the child in the introduction  to the General comment No.15[3] that most mortality, morbidity and disabilities among children could be prevented if there were political commitment and sufficient allocation of resources directed towards the application of available knowledge and technologies for prevention, treatment and care.

[1]  General Comment No.15 on the right of the child to the enjoyment of the highest attainable standard of health. Adopted by the Committee on the Rights of the Child at its sixty-second session ( 14 January – 1 February 2013)

[2] Key principle linking to all UNCRC

[3]  introduction to General Comment No.15, on the right of the child to the enjoyment of the highest attainable standard of health. Adopted by the Committee on the Rights of the Child at its sixty-second session ( 14 January – 1 February 2013)

Click here to read the 2023 EACH RESOLUTION on ‘CRITICALLY ILL CHILDREN’

Caregivers blinded by the care: A qualitative study of physical restraint in pediatric care

Introduction

While varying in extent and frequency, restraining children can be part of pediatric nurses’ routine. Children receiving pediatric care are often subject to clinical procedures for which they are unwilling to comply. A frightened child is naturally reluctant to the care and will at times put up a struggle. Sometimes, nurses may perceive themselves forced to physically restraint the child to carry on with the procedure, which only increases the level of distress.
This finding raises the quandary of using restraint while providing care. The daily or even usual use of force to provide pediatric care is slowly but steadily gaining exposure in medical literature, mainly in the context of inducting anesthesia in children.1 In especially difficult circumstances, they can have significant consequences. For example, applying forcefully the mask on the child’s face during the induction of anesthesia will increase the risk for the child to be frightened of the procedure.2,3
Factors recognized as influencing the decision to restrain a child are the necessity to carry on the procedure, its nature, the child’s safety, his level of agitation, his age, the parents’ opinion, the team’s security, and the capacity to obtain the child’s consent. Yet the decision is still sometimes taken randomly, and some criteria determining the use of restraint have proven at times self-contradictory.4 This relatively common situation leaves the nurses with the dilemma of using force for the child’s “good.” One can hypothesize that there are also individual and team issues coming into play regarding the choice to restrain a child while providing care. The emerging controversy as to the use of forceful physical restraint as part of the care provision or a medical examination leaves scope for changing practices. (below the abstract and the link to whole article)

Abstract

Background:

The phenomenon of forceful physical restraint in pediatric care is an ethical issue because it confronts professionals with the dilemma of using force for the child’s best interest. This is a paradox. The perspective of healthcare professional working in pediatric wards needs further in-depth investigations.

Purpose:

To explore the perspectives and behaviors of healthcare professionals toward forceful physical restraint in pediatric care.

Methods:

This qualitative ethnographic study used focus groups with purposeful sampling. Thirty volunteer healthcare professionals (nurses, hospital aids, physiotherapists, and health educators) were recruited in five pediatric facilities in four hospitals around Paris, France, from March to June 2013. The data were processed using NVIVO software (QSR International Ltd. 1999–2013). The data analysis followed a qualitative methodological process.

Ethical Considerations:

The research was conducted in compliance with the Declaration of Helsinki. Written informed consent was collected systematically from participants.

Findings:

This study provides elements to help understand why restraint remains common despite its contradiction with the duty to protect the child and the child’s rights. All participants considered the use of forceful physical restraint to be a frequent difficulty in pediatrics. Greater interest in the child’s health was systematically used to justify the use of force, with little consideration for contradictory or ethical aspects. Raising the issue of forceful restraint always triggered discomfort, unease and an outpour of emotions among healthcare professionals. The findings have highlighted a form of hierarchy of duties that give priority to the execution of the technical procedure and legitimize the use of restraint. Professionals seemed to temporarily suspend their ability to empathize in order to apply restraint to carry out a technical procedure. This observation has allowed us to suggest the concept of “transient empathic blindness.”

Conclusion:

Using physical restraint during pediatric care was considered a common problem by participants. This practice must be questioned, and professionals must have access to training to find alternatives to strong restraint. Conceptualizing this phenomenon with the concept of “transient empathic blindness” could help professionals understand what happens in their minds when using forceful restraint.

Whitepaper: Digital medication management in healthcare settings: a key opportunity for the European union

CALL FOR ACTION BY THE ALLIANCE FOR THE DIGITALISATION OF MEDICATION MANAGEMENT IN EUROPEAN HOSPITALS TO SUPPORT THE DIGITALISATION OF HOSPITALS’ MEDICATION MANAGEMENT PATHWAYS

Introduction
On the occasion of the revision of the basic pharmaceutical regulation, health managers, patients,
healthcare professionals and the medical technology industry have joined forces under the Alliance
for the Digitalisation of Medication Management in European Hospitals to issue
recommendations to the European Commission, the European Parliament and the Member States on
fostering the digitalisation of medication management.
The Alliance for the Digitalisation of Medication Management in European Hospitals is a group of
Brussels-based NGOs, founded in February 2022, advocating for the digitalisation of the medication
management pathway in European Hospitals.
Our alliance members are:

members alliance Digitalisation of medication management in European hospitals

Hospitals’ medication management pathways are complex and include several activities
involving ordering, reception, storing, prescription, compounding, distribution, and dispensing
/administration of medicines to patients across wards in hospitals. Stock control, management
and monitoring activities in this pathway require various clinical groups to ensure sufficient
supplies and the safe administration of medicine to patients. Yet tasks in this pathway are
defined by manual activities and digitalisation is lagging; the penetration of digitalisation of the
medication management pathway in ALL European countries is low.

Digitalisation of medication management means full track-and-trace medication management
solutions, otherwise known as closed-loop-medication management systems, from pharmacy to ward
to the patient’s bedside with a smart, automated, completely integrated digital approach. On the
occasion of the revision of the basic pharmaceutical regulation, in the context of the European
Pharmaceutical Strategy, the implementation of the EU4 Health programme and the advent of the
European Health Data Space, the Alliance for the Digitalisation of Medication Management in
European Hospitals provides recommendations to the European Commission, the European Parliament and the EU Member States to seize unique opportunities in existing and forthcoming policy, legislation and programmes to revolutionise hospitals medication management pathways by implementing and upscaling digitalisation in hospitals medication management pathways.

Implications low medication management whitepaper Digital medication management in healthcare settingsThe benefits of upscaling the digitalisation of hospitals’ medication management pathways include:

Resilient hospital systems with increased capabilities
Spending would be optimised, productivity increased, and waste reduced throughout the entire medication management pathway via the automation of manual activities which will reduce and eliminate non-reliable manual processes. Hospital managers and pharmacists would have data on expiring drugs supporting the environmental sustainability of supply chains.

More reliable information about the availability of medicines
More accurate visibility of hospitals’ medicine supplies can provide real-time information on the availability of critical medical products supporting the extended role of the European Medicines Agency for the management of medicine shortages via the new IT European Shortages Monitoring Platform (ESMP). Accurate information on medicine supply can reduce stock-outs and support the reallocation of products within regions and across member states.

Availability of real-world data in interoperable systems
Hospital budgets can save up to 15% with better use of health information. Interoperable patient generated health data, including data on medication, can pave the way for the delivery of personalised healthcare, the implementation of artificial intelligence (AI), the successful roll-out of the EHDS, the monitoring and evaluation of treatment outcomes and provide real-world data to support evidence based decision-making.

Antimicrobial stewardship
The fight against AMR through the prudent use of antibiotics can be enhanced by modernising hospitals’ medication management pathways. Implementing digital tools and systems can support antimicrobial stewardship programs to reduce antibiotic consumption and aid healthcare professionals ensure that the correct dose of the most appropriate antibiotic is administered to patients.

calls for action whitepaper Digital medication management in healthcare settingsTo read further please download our white paper CLICK HERE

Full White paper is published by the European Health Management Association (EHMA)
in November 2022. © 2022 EHMA. All rights reserved.
This report may be used for personal, research or educational use only, and may not be used for
commercial purposes. Any adaptation or modification of the content of this report is prohibited, unless
permission has been granted by the European Health Management Association (EHMA).

Medication is the main part of the therapeutic process for hospital patients and the second highest
spending chapter for health budgets. With hospitals stocking up to 200 medicines medication
management (often referred to the “medication management pathway”) is an onerous activity for
hospitals.

Better health care experiences for children are the ambition of new international standards

Better health care experiences for children are the ambition of new international rights-based standards launched by the ISupport group

The launch at hospitals across Europe marks the culmination of two years of work by the ISupport group, led by Professor Lucy Bray from Edge Hill University in the UK, and developed by ongoing consultation with health professionals, academics, young people, parents, child rights specialists, psychologists and youth workers.

Improve care for children

The standards aim to improve the care children receive when they have clinical tests, treatments or examinations by reducing harm and establishing trust.

Professor Bray said: “We would urge health professionals and organisations to do all they can to familiarise themselves with the standards and we hope that they prompt conversations in practice about how we can best support children before, during and after their procedure.”

“Every child’s best interests should be prioritised in all clinical decisions”

“We need to do more to make sure every child is supported to have a positive procedural experience and that their short- and long-term best interests are prioritised in all clinical decisions.”

Remain child-centered

“We have learned so much over the last two years, it has been amazing to work with children, parents and health professionals to develop the standards. Conversations have sometimes been challenging and sensitive, especially when we are talking about holding children for procedures. But throughout the process children and parents have challenged us to remain child-centred and make sure that the standards work for all children having healthcare procedures.”

ISupport was launched this week at conferences hosted by Alder Hey Children’s Hospital in Liverpool and the Nordic network for children’s rights and needs in Healthcare in Sweden.

Ambassador Katie Dixon

Katie Dixon, who was diagnosed with arthritis when she was 18 months old and underwent regular hospital treatment as a child, became involved with the ISupport project while studying psychology at Edge Hill University, and is now an ambassador and core team member of ISupport.

The 21-year-old from Lancashire in the UK, has experienced first-hand the psychological damage which can be caused by what she describes as “badly-handled procedures”.

“These bad experiences left me in severe fear and flashbacks, phantom association pains and nightmares. I ended up in psychological services for support by the age of seven but by that point it was sadly too late, the damage had been done.”

PTSD

Katie, who is now studying for a Masters in Health Psychology, has been diagnosed with PTSD and chronic anxiety around medical events.

“I will always rely on support from another person for every form of medical appointment, I live in fear every day which limits how I can be treated for my arthritis,

“Psychological wellbeing is as important as physical health and I want to create an awareness of the consequences that psychological trauma can have. With awareness we can prevent as many children and young people as possible going through what I did.

Improve the quality of care

“I am confident these new standards will help empower young patients and improve the quality of care and understanding shown by health professionals in the future.”

ISupport includes a call to action from children and young people, a version of the standards for both health professionals and families, a prep sheet to help children undergoing a clinical procedure and case studies to show how the standards look in practice.

The ISupport group is now working hard to ensure the standards are used as widely as possible around the world.

EACH

By working with the European Association for Children in Hospital (EACH) they are reaching as many organisations as possible, with a number of hospitals and healthcare organisations already signed up to adopt the standards.

Professor Bray added: “Families and professionals are invited to share their views on how the standards make a difference through this short online survey, this will help inform how we take this work forward and make sure we continue to highlight the importance of making every health care procedure positive for children.”

Go to rights-based standards documents
Go to the iSUPPORT website
Multiple translation are available on the ISupport website

Development of the My Positive Health dialogue tool for children: a qualitative study on children’s views of health

Patient perspective – Original research
  1. Abstract

Background Children’s views of health were explored in order to develop a health dialogue tool for children.

Methods A qualitative research design was used as part of a codesign process. Based on semi-structured interviews with both healthy children and children with a chronic condition (aged 8–18). Two approaches were applied. The first was an open exploration of children’s views on health, which was then thematically analysed. Subsequently, a framework was used, based on the six-dimensional My Positive Health (MPH) dialogue tool for adults, to guide the second part of the interviews, focusing on reviewing the children’s view on health within the context of the framework. For the final draft of the dialogue tool, a framework analysis was conducted and then validated by members of the ‘children’s council’ of the Wilhelmina Children’s Hospital.

Results We interviewed 65 children, 45 of whom had a chronic condition and 20 were healthy. The children described a broad concept of health with the central themes of ‘feeling good about yourself’ and ‘being able to participate’. Based on the subsequent framework analysis, the wording of two of the six dimensions of the MPH dialogue tool was adjusted and the related aspects were adapted for better alignment with the children’s concept of health. After these modifications, the tool fully matched the children’s concept of health.

Conclusion The MPH dialogue tool for children was developed for children with and without a chronic condition, to help them open up about what they consider important for their health and well-being, and to improve directorship over decisions and actions that would affect their health. The MPH dialogue tool aims to support healthcare professionals in providing the type of care and treatment that is in line with the needs of their young patients/clients.


Introduction

In recent years, the view on health has changed from a biomedical model focusing on health and illness, to a concept that also considers social and psychological aspects and the individual’s personal perspective on health. Within this trend, Huber et al propose a new concept that also takes people’s capacity to adapt and self-manage into account.1 Positive Health brings this new concept of health into practice. It focuses on fulfilment in life, with a real sense of well-being even in the presence of a chronic condition.2 To incorporate this concept into healthcare, the My Positive Health (MPH) dialogue tool was developed. This tool was created to support people in expressing their strengths and addressing their health-related needs, with the help of their healthcare professionals (HCP).2 The MPH dialogue tool (ie, the version for adults) consists of six dimensions that represent the aspects associated with health (online supplemental appendix A).

Read the whole article:Development of the My Positive Health dialogue tool for children: a qualitative study on children’s views of health | BMJ Paediatrics Open

  1. Stacey de Jong-Witjes1Marijke C Kars2Marja van Vliet3Machteld Huber3Sabine E I van der Laan1Eva N Gelens1Emma E Berkelbach van der Sprenkel1Sanne L Nijhof1Maretha V de Jonge4Hester Rippen5, Elise M van de Putte1
  2. Correspondence to Dr Elise M van de Putte; E.vandePutte@umcutrecht.nl

Zero separation: infant and family-centred developmental care in times of COVID-19

  • The Lancet Child & Adolescent Health
  • Ever since its initiation by the European Foundation for the Care of Newborn Infants (EFCNI) more than 10 years ago, World Prematurity Day on November 17 has become a global movement to raise awareness for preterm birth and its consequences. More than one in ten babies are born preterm every year, and numbers are still increasing worldwide. The immediate and long-term health effects are severe; preterm birth is one of the leading causes of neonatal death.
World Prematurity Day 2021 highlights the specific challenges that babies born too soon and their families have been facing during the still ongoing COVID-19 pandemic. For almost 2 years now, societies and health systems worldwide have been disrupted. Although the focus has rightly been on managing the COVID-19 crisis and its fallout, pandemic-related restrictions have also affected quality of care, including the application of an evidence-based infant and family-centred developmental care approach.
Implemented restrictions have put additional pressure on the already vulnerable group of newborn babies and their families, with the full effect of the long-term consequences yet to be seen.
In contrast to international agreements, such as the 2030 Development Agenda or the UN Convention on the Rights of the Child, which underline the right to health and the right of children to be close to their parents, separation policies have been implemented in many neonatal intensive care units (NICUs) across countries. Although infection control measures were necessary to manage the emergency situation, the pace and blanket coverage of these measures applied also to parents of vulnerable infants, with immediate implications for child growth and development, and for the family as a whole.


 

 

Five Reasons Why Pediatric Settings Should Integrate the Play Specialist and Five Issues in Practice

OPINION article

Introduction

Article 31 of the Convention on the Rights of the Child of the United Nations identifies play as a human right (Lundy, 2012) and the European Association for Children in Hospital (1988) lists play among the fundamental children’s rights in healthcare (article 1–10). Playing is also a parameter to monitor the child’s physical, emotional, cognitive, and executive development and well-being (Sutton-Smith, 1999Koukourikos et al., 2015). Entering a medical setting exposes the child to many different risks for mental health (e.g., depression, withdrawal, regression, sleep problems, anxiety, hypochondria) because his/her familiar routine is disrupted (Chambers, 1993). In these cases, structured play-activities with a specialized professional can provide the child with a sense of continuity with the life before the illness (Romito et al., 2021) or with an imaginary escape from reality (Tanaka et al., 2010Bukola and Paula, 2017).


Front. Psychol., 29 June 2021 | https://doi.org/10.3389/fpsyg.2021.687292

Giulia Perasso1,2*, Gloria Camurati2, Elizabeth Morrin3, Courtney Dill4, Khatuna Dolidze5, Tina Clegg6, Ilaria Simonelli7, Hang Yin Candy Lo8, Andrea Magione-Standish9, Bobbijo Pansier9, Sandra Cabrita Gulyurtlu10, Adam Garone11 and Hester Rippen12


In the 1920s, F. Nightingale and F. Erikson were the first nurses intuiting the importance of systemizing playing sessions to ameliorate children’s hospitalization experience and adherence to medical procedures (Frauman and Gilman, 1989Francischinelli et al., 2012). Then, the books “Working with Children in Hospital” (Plank, 1962), “Children in the Hospital” (Bergmann, 1965), “Play in Hospital” (Harvey and Hales-Tooke, 1972) highlighted that introducing a specialist in play-activities in the hospital was fundamental for the child’s psychosocial well-being. By the same token, Brooks (1970) remarked that the “Play Lady” should not be considered a recreational figure for hospitalized children but a psycho-pedagogical intervener that supports the child when he/she is coping with the illness. As Rubin (1992) points out, a large body of synonyms (e.g., play lady, puppet lady, playing checkers, playing teacher, recreational therapist) was used between the ’60 and the ’80 to describe the same role. Nowadays, there are still many synonyms describing these professionals (e.g., Healthcare Play Specialist, Certified Child Life Specialist, Child Play Specialist, Medic Pedagogic Healthcare worker), and the need for creating scientific consensus around this role is urgent. As emerged from 29th January 2021 Virtual Round Table “Playing in the Hospital,” most of the international stakeholders indicated the term “Play Specialist” (PS) as an encompassing worldwide macro-label to describe this professionalism (Porto dei Piccoli, 2021). The PS differs from the play-therapist since play therapy is a counseling technique used in psychoanalytic psychotherapy (Leblanc and Ritchie, 2001). All over the world, hospitals, trusts, and charities often promote the PS in the pediatric care settings. No-profit organization are crucial to promote the PS in countries where the role is not integrated yet in the healthcare system. The lack of international guidelines for the PS practice leads these professionals to theoretical and operative fragmentation, challenges, and issues that Covid-19 pandemic is further stressing out. The aim of the present paper is promoting knowledge about the PS by defining the professionalism, analyzing the obstacles that hinders the PS practice, and emphasizing the reasons why promoting the PS in pediatric care settings (e.g., hospitals, home-based care).

Who Is the Play Specialist? What Does the Play Specialist Do?

Notwithstanding countries terminological differences (e.g., in the UK the PS is named Healthcare Play Specialist, in the USA and Canada is named Certified Child Life Specialist), the PS can be described in the light of a common body of practice. Firstly, all over the world, becoming a PS requires a specific training accessible with a bachelor’s degree in psychological or pedagogical sciences as a prerequisite (Harvey, 1984Lookabaugh and Ballard, 2018). In several countries (e.g., Netherlands, UK, US) the Play Specialist is an official education degree, in others (e.g., Italy) the training is organized and financially supported by trust and charities, with discretion in the duration and total hours. Generally, the PS training focuses on the child development’s milestones (e.g., physical, cognitive, communicative, emotion regulation, social skills maturation) from a medical, psychological, and pedagogic point of view, to enable PS to provide children with age-specific and diagnoses-specific play activities (Beickert and Mora, 2017). Completing a certified training is crucial because it predicts the use of research-based strategies by the PS to work with the child (Bandstra et al., 2008). Once trained, the PS can support children with various play techniques. Among a wide range of actions, the most practiced ones are the normative play and medical play (Burns-Nader and Hernandez-Reif, 2016). The normative play encompasses all the play activities that the child would experience at home. It conveys the message that the child can play and be creative in the hospital as he/she does in well-known places. On the other hand, the medical play helps the child to learn about health and illness and to familiarize herself/himself with the hospital context, aiming at reducing the child’s anxiety toward medical procedures. According to Barry (2008), such activities can also occur outside the hospital ward by organizing house-visits and experiential weekends. Such experiential occasions help children with specific chronic conditions (e.g., diabetes) to increase their health-related self-efficacy outside their comfort-zone.

A few studies have attempted to profile the PS. In the US, Lookabaugh and Ballard (2018) survey on the Child Life Specialists reports that most PS work in hospitals (93% of the respondents, n = 147). Bottino et al. (2019) add that the Child Life Specialists are mostly females, in their thirties, with 88% respondents (total n = 110) working to ameliorate children’s coping, family perception of support, children collaboration in medical procedures. Similar surveys were conducted in Japan (Tanaka et al., 2010) and New Zeland (Goh et al., 2019), while Europe still lacks survey-evidence about PS. Much needs to be done to profile the true nature and prevalence of this profession across the globe to build a common ground for practice.

Five Challenges in Practicing the PS Profession and Suggested Solutions

Both in countries where the healthcare system does not incorporate the PS as well as in countries where the PS professionalism is acknowledged, a variety of issues arise. The following challenges are analyzed in the light of possible solutions. (i) Creating a common ground for research: the proliferation of different labels, and operative strategies hindered creating an evidence-based framework for PS professionalism. A standardized data collection system should be implemented (Goh et al., 2019). Different-countries stakeholders should build methodological consensus addressing at: (a) facilitating information sharing with the medical staff and (b) corroborating the reputation of this professional with empirical evidence. (ii) Implementing specific intervention strategies: given the link between practice heterogeneity and research fragmentation, international stakeholders should isolate the core-PS activities (i.e., normative play and medical play) from supplementary actions (i.e., educational video gaming and pet-therapy) (Kaminski et al., 2002Jurdi et al., 2018) to analyze the effect of the intervention. Plus, age-specific, and diagnosis-specific evidence-based intervention protocols should be built, tested, and shared across countries. (iii) Health Providers need to recognize PS as an essential part of the team: PS intervention is complementary to the doctors’ and nurses’ work, and it aims at explaining to children the procedure they apply and make them comfortable in the interactions with the medical staff (Metzger et al., 2013Beickert and Mora, 2017). The hospital staff may be confused by the lack of acknowledgment of the PS in the healthcare field. They could consider the PS a ward volunteer, and sometimes the nurses and doctors may play with children themselves (e.g., especially before stressing medical procedures), without having the PS background and a structured play program (Tanaka et al., 2010Kihara and Yamamoto, 2018). Managing misperceptions and improper role-overlapping should be a priority to enhance the alliance between PS and hospital staff. (iv) Policy-makers, commissioners, and funders should invest in PS as part of mainstream health care delivery: Charities, trusts, and several stakeholders worldwide financially support the PS and children’s rights (Simonelli et al., 2014). Gaining more visibility through an international consortium may increase the attention paid to this role in national and international healthcare systems. Joined actions to concur in international calls for funding may also result in a crucial strategy to increase funds. (v) Supporting hospitals during Covid-19 pandemics: During the Covid-19 pandemic, several countries’ governments blocked access to pediatric hospitals to external professionals from non-governmental associations. In Italy, such restriction led many families to be deprived of PS support or to rely on the PS online intervention (Perasso et al., 2020). Given the vital role of PS in children’s healthcare, pandemics crisis could constitute an opportunity to incorporate the PS in the healthcare system. In fact, it has never been more urgent to make hospitals friendly and safe again in children and families’ perception. Stakeholders, trusts, and charities should dialogue with policy makers to regulate the PS access to hospital (e.g., discussing Covid-19 testing and safety equipment), and to engage the PS in future children’s anti-Covid vaccination campaigns.

Five Reasons Why Medical Settings Should Integrate the Play Specialist

Given that in many countries the PS is not yet integrated in the medical settings, the need for further recognition for this role is pending to build a global common ground for the PS. In line with purpose, the present paragraph points out the research findings demonstrating that the PS intervention positively impacts both the child and the medical setting. Five main reasons based on evidence are provided. (i) Improving the child well-being: research demonstrates that the PS intervention effectively improves coping strategies and reduces anxiety and stress levels among hospitalized children (Gill, 2010Moore et al., 2015Li et al., 2016Ullan and Belver, 2019). Evidence from a survey administered to doctors and nurses reveals that having a PS in the hospital ward, who effectively provides the child with distraction techniques, helps to ensure that the pediatric patient is relaxed during medical procedures (Tanaka et al., 2010Bukola and Paula, 2017). (ii) The child needs less sedation for pain management: literature shows that the PS intervention improves the child’s pain management strategies (i.e., behavioral, physical, cognitive, and complementary), replacing the need for pharmacological protocols and sedation (Bandstra et al., 2008). Evidence from the UK (Gulyurtlu et al., 2020), documenting over 1,000 responses from health professionals on the impact of play-specialist intervention, demonstrates that distraction play techniques can reduce children’s feelings of pain associated with hospital treatment. (iii) The child is more adherent to the medical treatment: The PS intervention (e.g., distraction techniques) can decrease negative emotions, resulting in treatment compliance by the pediatric patient (Gill, 2010Taddio and McMurtry, 2015). When a child is hospitalized, she/he also experiences power imbalance about health-related decisions as adults choose on behalf of her/him (Bricher, 2000), leading her/him to opposing reactions. Play can empower the child in the medical setting (Li et al., 2016) as the PS represents a crucial mediator to advocate the child’s right in the medical setting by informing her/him about adult’s choices, corroborating the child’s sense of responsibility on health-related issues and enhancing the compliance toward treatments. (iv) Play is an essential part of palliative care: the PS support is crucial in palliative care to provide children with compensatory experiences, to create supportive bonds for the family system, and to psychologically prepare parents for the eventuality of loss (Basak et al., 2019). (v) Savings for the hospitals: A single case study by Metzger et al. (2013) points out that the PS intervention effectively reduced a 8-year-old patient’s anxiety before MRI-examination. After the PS intervention, the radiologist did not evaluate the anesthesia necessary before MRI with two positive consequences: the child was spared from anesthesia, and the hospital saved the anesthesia cost. Grissom et al. (2016) reported a similar finding on a sample of n = 116 children, aging between 5 and 12, affected by nervous system diseases. It is also worth noticing that specific diagnoses and symptoms (e.g., attention deficit and hyperactivity disorder, autism spectrum disorder, intellectual disabilities, borderline personality traits) in children and adolescents are particularly challenging for doctors and nurses (Jaunay et al., 2006Scarpinato et al., 2010Brinkman et al., 2011). Having a PS effectively providing tools to increase emotion and behavioral regulation in a wide range of diagnosis among pediatric patients may save hospital personnel’s time and spare doctors and nurses from physical efforts and psychological stress.

Conclusion

The paper aims to sensitize the scientific community about the importance of play-specialist’s intervention for ill children in medical settings, and to raise awareness in policy-makers for officially integrating the PS in the healthcare field. Internationally, stakeholders, trusts, and charities are pointing out that the PS is a vital professionalism to advocate the psychosocial well-being of the pediatric patients and their families.

Author Contributions

GP written the paper. GC, EM, CD, KD, TC, IS, HL, AM-S, BP, SG, AG, and HR contributed to the conception of the paper. All authors contributed to the article and approved the submitted version.

Funding

The paper was financed by the fund for the assistance of oncological children of the Italian Ministry of Labor and Social Policy (avv. 1/2020, ranking D.D. 307/2020, 17.09.2020).

Conflict of Interest

The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

Acknowledgments

We thank the staff of our organizations all around the world for they everyday work with children who are experiencing illness. A special acknowledgment also goes to all the families and children that trust in the play specialists’ professionalism.

References

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Keywords: playing, children, adolescents, hospital, hospitalization, play specialists

Citation: Perasso G, Camurati G, Morrin E, Dill C, Dolidze K, Clegg T, Simonelli I, Lo HYC, Magione-Standish A, Pansier B, Gulyurtlu SC, Garone A and Rippen H (2021) Five Reasons Why Pediatric Settings Should Integrate the Play Specialist and Five Issues in Practice. Front. Psychol. 12:687292. doi: 10.3389/fpsyg.2021.687292

Received: 29 March 2021; Accepted: 02 June 2021;
Published: 29 June 2021.

Edited by:

Matteo Angelo Fabris, University of Turin, Italy

Reviewed by:

Haeryun Cho, Wonkwang University, South Korea
Adriana Lis, University of Padua, Italy
Peggy Ceballos, University of North Texas, United States

Copyright © 2021 Perasso, Camurati, Morrin, Dill, Dolidze, Clegg, Simonelli, Lo, Magione-Standish, Pansier, Gulyurtlu, Garone and Rippen. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

*Correspondence: Giulia Perasso, giuperasso@live.it

Informing children who come to hospital for a procedure

The free resource ‘Children Coming to Hospital’ has been developed between Edge Hill University and children and young people based on research findings. The resource is made up of two short animations and a comic strip which aim to make hospital visits better for children.

The animation and this comic strip for children both present information about what may happen when children come to hospital for procedures such as scans, X-rays and blood tests.

The resource also includes a short animation for health professionals with practical advice about how to support and communicate with children coming to hospital.

The animations and comic strip are FREE to download and will be shared with hospitals and clinics so that children coming to hospital can access them easily.

Lucy Bray, Ed Horowicz, Bernie Carter

Faculty of Health and Social Care
Edge Hill University, United Kingdom

 

Hello I am Corona – information in 18 languages about the coronavirus for children

A Belgian website of two psychotherapists presents information for children about the Corona virus.

Below you find the links to the pdf-files they published in lots of different languages. Click the links to get at a pdf.

Download – Arabic (pdf)
Download – Catalan (pdf)
Download – Czech (pdf)
Download – Danish (pdf)
Download – Dari (pdf)
Download – Dutch (pdf)
Download – English (pdf)
Download – French (pdf)
Download – German (pdf)
Download – Italian (pdf)
Download – Norwegian (pdf)
Download – Polish (pdf)
Download – Portuguese (pdf)
Download – Russian (pdf)
Download – Slovak (pdf)
Download – Spanish (pdf)
Download – Swedish (pdf)
Download – Turkish (pdf)

Talking to children about COVID-19

In the brochure Talking to children about illness, the British Psychological Society states:

Adults have a key role in helping children understand what is going on, providing information and reassurance, limiting media overload for children, and being aware of how their own reactions might impact on children.

The brochure specifies:

  • what it is important to understand talking to children from different age groups about illness in general,
  • what they may do or say, and
  • what you can do to help.

Download the brochure